Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.

Leaving everything behind to start over in another country was challenging. However, I never gave up on myself. My health has improved significantly over the past few years, and I am fulfilling my ...

Living with cystic fibrosis means constantly navigating the emotional and physical strain of waiting. Despite the exhaustion and uncertainty, waiting reminds us of our ability to endure in the face of ...

Randy was my fourth child, and we were extremely close. When he was a baby, he got very sick with spinal meningitis, which led to deafness in one ear. Despite surviving this, Randy faced various ...

A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and ...

I got dangerously sick while waiting for double-lung and liver transplants. But then I got a second chance at life after starting Trikafta, even though I have two rare mutations.

I was labeled as different in school because I was always in the nurse's office, coughing, or eating like a pig. It all started in elementary school and still happens today, even though I am in ...