Being told it was time to consider a transplant came with thoughts of doubt and immense fear, as well as a few happier moments when I let my mind dream of the possibility of another chance at life.
Living with cystic fibrosis means constantly navigating the emotional and physical strain of waiting. Despite the exhaustion and uncertainty, waiting reminds us of our ability to endure in the face of ...
Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.
Leaving everything behind to start over in another country was challenging. However, I never gave up on myself. My health has improved significantly over the past few years, and I am fulfilling my ...
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
Randy was my fourth child, and we were extremely close. When he was a baby, he got very sick with spinal meningitis, which led to deafness in one ear. Despite surviving this, Randy faced various ...
I found myself crying, staring at my therapist sitting on the other end of Zoom. And it was not in a subtle sort of way where the tears prickle in the corner of your eyes, and you can sniffle your ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...