Crigler najjar Syndrome
Crigler najjar Syndrome
Apr 11, 2024
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Kelly est atteinte du syndrome de Crigler-Najjar, une maladie génétique rare du foie. Pour éviter de graves dommages neurologiques, elle doit utiliser la photothérapie et passer 10h par jour sous 390 LED. Généthon, le laboratoire du Telethon, a mis au point un traitement de thérapie génique qui montre des premiers résultats encourageants. Sa vie d'ado de 15 ans, voici comment elle la vit. #Téléthon2023 | Brut
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Kelly est atteinte du syndrome de Crigler-Najjar, une maladie généti…
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